TY - JOUR
T1 - Social Media and Myeloproliferative Neoplasms (MPN)
T2 - Analysis of Advanced Metrics From the First Year of a New Twitter Community: #MPNSM
AU - Pemmaraju, Naveen
AU - Utengen, Audun
AU - Gupta, Vikas
AU - Kiladjian, Jean Jacques
AU - Mesa, Ruben
AU - Thompson, Michael A.
N1 - Funding Information:
This research is supported in part by the MD Anderson Cancer Center Support Grant P30 CA016672. The authors thank Dr Matthew Katz and the creators of the Cancer Ontology Tag (CTO) Program for their example and inspiration, and the founders and members of Symplur, and the Healthcare Hashtags Project for their continued analysis and support.
Funding Information:
Vikas Gupta received research grants from Novartis, Incyte, Gilead, and Promedior through his institution; served on scientific advisory board of Novartis, Incyte and received honorarium from Novartis/Incyte.
Funding Information:
Jean-Jacques Kiladjian reports grants from Novartis and AOP Orphan and personal fees from Novartis, Incyte, AOP Orphan, and Shire.
Publisher Copyright:
© 2016, Springer Science+Business Media New York.
PY - 2016/12/1
Y1 - 2016/12/1
N2 - The social media platform Twitter has provided the hematology/oncology community with unprecedented, novel methods of interpersonal communication and increased ability for the dissemination of important updates in a rapidly moving field. The advent, and subsequent success, of disease-specific Twitter communities have further enabled interested healthcare stakeholders to become quickly organized around a unique set of rare medical conditions, such as hematologic malignancies, that, historically, generally lack large amounts of reliable online information. One example is the Twitter community #MPNSM (myeloproliferative neoplasms on social media), which was started approximately one and half years ago and has served as a recognized venue for discussion among many members of the MPN community, including patients, researchers, providers, and advocacy organizations. This article will focus on understanding the impact of the founding of this community via the analysis of advanced Twitter metrics of user experience, from the first year of use for this novel healthcare hashtag.
AB - The social media platform Twitter has provided the hematology/oncology community with unprecedented, novel methods of interpersonal communication and increased ability for the dissemination of important updates in a rapidly moving field. The advent, and subsequent success, of disease-specific Twitter communities have further enabled interested healthcare stakeholders to become quickly organized around a unique set of rare medical conditions, such as hematologic malignancies, that, historically, generally lack large amounts of reliable online information. One example is the Twitter community #MPNSM (myeloproliferative neoplasms on social media), which was started approximately one and half years ago and has served as a recognized venue for discussion among many members of the MPN community, including patients, researchers, providers, and advocacy organizations. This article will focus on understanding the impact of the founding of this community via the analysis of advanced Twitter metrics of user experience, from the first year of use for this novel healthcare hashtag.
KW - Disease-specific hashtag
KW - Myelofibrosis
KW - Myeloproliferative neoplasm
KW - Polycythemia vera
KW - Social media
KW - Twitter
UR - http://www.scopus.com/inward/record.url?scp=84982902934&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=84982902934&partnerID=8YFLogxK
U2 - 10.1007/s11899-016-0341-2
DO - 10.1007/s11899-016-0341-2
M3 - Review article
C2 - 27492118
AN - SCOPUS:84982902934
SN - 1558-8211
VL - 11
SP - 456
EP - 461
JO - Current Hematologic Malignancy Reports
JF - Current Hematologic Malignancy Reports
IS - 6
ER -