@article{ca49397f0e09401982bdb12d4352028c,
title = "Integrating Family Caregivers of People With Alzheimer{\textquoteright}s Disease and Dementias into Clinical Appointments: Identifying Potential Best Practices",
abstract = "Family caregiver engagement in clinical encounters can promote relationship-centered care and optimize outcomes for people with Alzheimer{\textquoteright}s disease and related dementias (ADRD). Little is known, however, about effective ways for health care providers to engage family caregivers in clinical appointments to provide the highest quality care. We describe what caregivers of people with ADRD and people with mild cognitive impairment (MCI) consider potential best practices for engaging caregivers as partners in clinical appointments. Seven online focus groups were convened. Three groups included spousal caregivers (n = 42), three included non-spousal caregivers (n = 36), and one included people with MCI (n = 15). Seven potential best practices were identified, including the following: “acknowledge caregivers{\textquoteright} role and assess unmet needs and capacity to care” and “communicate directly with person with ADRD yet provide opportunities for caregivers to have separate interactions with providers.” Participants outlined concrete steps for providers and health care systems to improve care delivery quality for people with ADRD.",
keywords = "Alzheimer{\textquoteright}s disease, best practices, online focus groups, patient-centered care, relationship-centered care",
author = "Griffin, {Joan M.} and Catherine Riffin and Havyer, {Rachel D.} and Biggar, {Virginia S.} and Meryl Comer and Frangiosa, {Theresa L.} and Bangerter, {Lauren R.}",
note = "Funding Information: https://orcid.org/0000-0001-8120-3229 Griffin Joan M. 1 Riffin Catherine 2 Havyer Rachel D. 1 Biggar Virginia S. 3 Comer Meryl 3 Frangiosa Theresa L. 3 Bangerter Lauren R. 1 1 Mayo Clinic, Rochester, MN, USA 2 Weill Cornell Medicine, New York, NY, USA 3 UsAgainstAlzheimer{\textquoteright}s, Washington, DC, USA Joan M. Griffin, Mayo Clinic, 200 First Street SW, Rochester, MN 55905, USA. Email: griffin.joan@mayo.edu 10 2019 0733464819880449 20 3 2019 29 7 2019 11 9 2019 {\textcopyright} The Author(s) 2019 2019 Southern Gerontological Society Family caregiver engagement in clinical encounters can promote relationship-centered care and optimize outcomes for people with Alzheimer{\textquoteright}s disease and related dementias (ADRD). Little is known, however, about effective ways for health care providers to engage family caregivers in clinical appointments to provide the highest quality care. We describe what caregivers of people with ADRD and people with mild cognitive impairment (MCI) consider potential best practices for engaging caregivers as partners in clinical appointments. Seven online focus groups were convened. Three groups included spousal caregivers ( n = 42), three included non-spousal caregivers ( n = 36), and one included people with MCI ( n = 15). Seven potential best practices were identified, including the following: “acknowledge caregivers{\textquoteright} role and assess unmet needs and capacity to care” and “communicate directly with person with ADRD yet provide opportunities for caregivers to have separate interactions with providers.” Participants outlined concrete steps for providers and health care systems to improve care delivery quality for people with ADRD. online focus groups relationship-centered care patient-centered care best practices Alzheimer{\textquoteright}s disease mayo clinic https://doi.org/10.13039/100000871 edited-state corrected-proof The authors wish to acknowledge the participants who gave their time and shared their experiences for this research and Ashley Baker and Amanda Nelson for their assistance. Authors{\textquoteright} Note J.M.G. is at Mayo Clinic, Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery, Rochester, MN, and Mayo Clinic, Division of Health Care Policy and Research. Declaration of Conflicting Interests The author(s) declared no potential conflicts of interest with respect to the research, authorship, and/or publication of this article. Funding The author(s) disclosed receipt of the following financial support for the research, authorship, and/or publication of this article: This work was supported by Robert D. and Patricia E. Kern Center for the Science of Health Care Delivery at Mayo Clinic and through collaboration with USAgainstAlzheimer{\textquoteright}s. ORCID iD Joan M. Griffin https://orcid.org/0000-0001-8120-3229 Publisher Copyright: {\textcopyright} The Author(s) 2019.",
year = "2020",
month = nov,
day = "1",
doi = "10.1177/0733464819880449",
language = "English (US)",
volume = "39",
pages = "1184--1194",
journal = "Journal of Applied Gerontology",
issn = "0733-4648",
publisher = "SAGE Publications Inc.",
number = "11",
}