TY - JOUR
T1 - Florida-California Cancer Health Equity Center (CaRE2) Community Scientist Research Advocacy Program
AU - Hensel, B.
AU - Askins, N.
AU - Ibarra, E.
AU - Aristizabal, C.
AU - Guzman, I.
AU - Barahona, R.
AU - Hazelton-Glenn, B.
AU - Lee, J.
AU - Zhang, Z.
AU - Odedina, F.
AU - Wilkie, D. J.
AU - Stern, M. C.
AU - Baezconde-Garbanati, L.
AU - Suther, S.
AU - Webb, F.
N1 - Publisher Copyright:
© 2023, The Author(s).
PY - 2023/10
Y1 - 2023/10
N2 - The Community Scientist Program (CSP), a model connecting researchers with community members, is effective to inform and involve the general population in health-related clinical research. Given the existing cancer disparities among Black/African American and Hispanic/Latino/a populations, more models describing how cancer-related CSPs are designed, implemented, and evaluated are needed. The Florida-California Cancer Research, Education and Engagement (CaRE2) Health Equity Center is a tri-institutional, bicoastal center created to eliminate cancer health disparities among Black/African American and Hispanic/Latino/a populations living in California and in Florida. The CaRE2 Center created a Community Scientist Research Advocacy (CSRA) training program for community members to become cancer research advocates. The CSRA program is currently a 13-week program conducted 100% virtually with all materials provided in English and Spanish for participants to learn more about prostate, lung, and pancreas cancers, ongoing research at CaRE2, and ways to share cancer research throughout their communities. Participants attend didactic lectures on cancer research during weeks 1–5. In week 4, participants join CSRA self-selected groups based on cancer-related topics of interest. Each group presents their cancer-related advocacy project developed during weeks 5–12 at the final session. In this paper, we describe the CaRE2 Health Equity Center’s CSRA program, share results, and discuss opportunities for improvement in future program evaluation as well as replication of this model in other communities.
AB - The Community Scientist Program (CSP), a model connecting researchers with community members, is effective to inform and involve the general population in health-related clinical research. Given the existing cancer disparities among Black/African American and Hispanic/Latino/a populations, more models describing how cancer-related CSPs are designed, implemented, and evaluated are needed. The Florida-California Cancer Research, Education and Engagement (CaRE2) Health Equity Center is a tri-institutional, bicoastal center created to eliminate cancer health disparities among Black/African American and Hispanic/Latino/a populations living in California and in Florida. The CaRE2 Center created a Community Scientist Research Advocacy (CSRA) training program for community members to become cancer research advocates. The CSRA program is currently a 13-week program conducted 100% virtually with all materials provided in English and Spanish for participants to learn more about prostate, lung, and pancreas cancers, ongoing research at CaRE2, and ways to share cancer research throughout their communities. Participants attend didactic lectures on cancer research during weeks 1–5. In week 4, participants join CSRA self-selected groups based on cancer-related topics of interest. Each group presents their cancer-related advocacy project developed during weeks 5–12 at the final session. In this paper, we describe the CaRE2 Health Equity Center’s CSRA program, share results, and discuss opportunities for improvement in future program evaluation as well as replication of this model in other communities.
KW - Community Scientist Research Advocacy Program (CSRA)
KW - Community engagement
KW - Community scientist
KW - Health disparities
KW - Research advocacy
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UR - http://www.scopus.com/inward/citedby.url?scp=85169046229&partnerID=8YFLogxK
U2 - 10.1007/s13187-023-02351-3
DO - 10.1007/s13187-023-02351-3
M3 - Article
C2 - 37642919
AN - SCOPUS:85169046229
SN - 0885-8195
VL - 38
SP - 1429
EP - 1439
JO - Journal of Cancer Education
JF - Journal of Cancer Education
IS - 5
ER -