| Original language | English (US) |
|---|---|
| Pages (from-to) | 291-318 |
| Number of pages | 28 |
| Journal | Milbank Quarterly |
| Volume | 95 |
| Issue number | 2 |
| DOIs | |
| State | Published - Jun 2017 |
Keywords
- ethics
- genetic testing
- public opinion
- regulation
ASJC Scopus subject areas
- Health Policy
- Public Health, Environmental and Occupational Health
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In: Milbank Quarterly, Vol. 95, No. 2, 06.2017, p. 291-318.
Research output: Contribution to journal › Article › peer-review
}
TY - JOUR
T1 - Consumer Perspectives on Access to Direct-to-Consumer Genetic Testing
T2 - Role of Demographic Factors and the Testing Experience
AU - for the PGen Study Group
AU - Gollust, Sarah E.
AU - Gray, Stacy W.
AU - Carere, Deanna Alexis
AU - Koenig, Barbara A.
AU - Lehmann, Lisa Soleymani
AU - McGuire, A. M.Y.L.
AU - Sharp, Richard R.
AU - Spector-Bagdady, Kayte
AU - Wang, Na
AU - Green, robert C.
AU - Roberts, J. Scott
N1 - Funding Information: The PGen Study is supported by the National Institutes of Health (NIH) National Human Genome Research Institute (R01-HG005092). The content is solely the responsibility of the authors and does not necessarily represent the official views of the National Center for Research Resources, or the National Institutes of Health. Robert C. Green is also supported by U01-HG006500 and U41-HG006834. Amy L. McGuire is also supported by U01-HG006500. Deanna Alexis Carere is funded by a Canadian Institutes of Health Research Postdoctoral Fellowship Award and by the Michael G. DeGroote Postdoctoral Fellowship from McMaster University. Barbara Koenig is also supported by P20 HG007243. Conflict of Interest Disclosures: All authors have completed and submitted the ICMJE Form for Disclosure of Potential Conflicts of Interest. The research team partnered with 23andMe and Pathway Genomics in order to gain access to consumers of their services for implementation of the surveys described in our manuscript. However, these companies did not provide funding for the project, and this manuscript was independently conceived and completed. Outside of the submitted work, Amy McGuire provided consulting services to Human Longevity Inc, and Richard Sharp was a noncompensated adviser to 23andMe, which supported his travel to attend an in-person meeting held near the company's headquarters. Acknowledgments: Nonauthor members of the PGen Study at the time of publication are as follows: Joel B. Krier, Margaret H. Helm, Sarah S. Kalia, Kurt D. Christensen, Harvard Medical School and Brigham and Women's Hospital; Mack T. Ruffin IV, Lan Q. Le, Jenny Ostergren, University of Michigan School of Public Health; Wendy R. Uhlmann, Mick P. Couper, University of Michigan; Joanna L. Mountain, Amy K. Kiefer, 23andMe; Glenn Braunstein, Pathway Genomics; Scott D. Crawford, SoundRocket; L. Adrienne Cupples, Clara A. Chen, Catharine Wang, Boston University; Kimberly Kaphingst, University of Utah. The authors acknowledge helpful discussion on some of the ideas in this article with Patricia J. Zettler, JD.
PY - 2017/6
Y1 - 2017/6
KW - ethics
KW - genetic testing
KW - public opinion
KW - regulation
UR - http://www.scopus.com/inward/record.url?scp=85020296368&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85020296368&partnerID=8YFLogxK
U2 - 10.1111/1468-0009.12262
DO - 10.1111/1468-0009.12262
M3 - Article
C2 - 28589610
AN - SCOPUS:85020296368
SN - 0887-378X
VL - 95
SP - 291
EP - 318
JO - Milbank Quarterly
JF - Milbank Quarterly
IS - 2
ER -