TY - JOUR
T1 - Comprehensive handbook for developing a bladder cancer cystectomy database
AU - Lotan, Yair
AU - Amiel, Gilad
AU - Boorjian, Stephen A.
AU - Clark, Peter E.
AU - Droller, Michael
AU - Gingrich, Jeffrey R.
AU - Guzzo, Thomas J.
AU - Inman, Brant A.
AU - Kamat, Ashish M.
AU - Karsh, Larry
AU - Nielsen, Matthew E.
AU - Smith, Norm D.
AU - Shariat, Shahrokh F.
AU - Svatek, Robert S.
AU - Taylor, Jennifer M.
PY - 2013/8
Y1 - 2013/8
N2 - Objective: In an effort to standardize data collection for research regarding bladder cancer, the Bladder Cancer Working Group sought to provide a handbook that can be used as a guide for prospective or retrospective data collection. Methods: Expert opinions for various data groups were compiled through a team of researchers at the BCAN. Peer review of each data group was performed from within the group. Results: Essential and comprehensive data elements are provided for 9 groups of data elements, including demographics, comorbidities, staging, laboratory data, operative details, pathology, complications, outcomes, and quality of life measurements. Conclusions: Establishment of a comprehensive bladder cancer database is important in initiating multicenter collaborations. While not every data point is critical, this review may be useful in serving as a reference in initiating projects and providing a framework for collaborations.
AB - Objective: In an effort to standardize data collection for research regarding bladder cancer, the Bladder Cancer Working Group sought to provide a handbook that can be used as a guide for prospective or retrospective data collection. Methods: Expert opinions for various data groups were compiled through a team of researchers at the BCAN. Peer review of each data group was performed from within the group. Results: Essential and comprehensive data elements are provided for 9 groups of data elements, including demographics, comorbidities, staging, laboratory data, operative details, pathology, complications, outcomes, and quality of life measurements. Conclusions: Establishment of a comprehensive bladder cancer database is important in initiating multicenter collaborations. While not every data point is critical, this review may be useful in serving as a reference in initiating projects and providing a framework for collaborations.
KW - Bladder cancer
KW - Databases
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U2 - 10.1016/j.urolonc.2011.09.004
DO - 10.1016/j.urolonc.2011.09.004
M3 - Review article
C2 - 22056403
AN - SCOPUS:84880702543
SN - 1078-1439
VL - 31
SP - 812
EP - 826
JO - Urologic Oncology: Seminars and Original Investigations
JF - Urologic Oncology: Seminars and Original Investigations
IS - 6
ER -