Project Details
Description
Project Summary/Abstract
There are over 1,000 clinics in the U.S. marketing scientifically unsubstantiated stem cell interventions (SCIs)
outside federal regulation and oversight. One major risk to patients from unregulated SCIs is the harm of being
misinformed. This has led tens of thousands of patients to take an unregulated SCI resulting in physical,
financial, and emotional harm. Our aging population with chronic diseases is the main target of stem cell
commercials. They represent a unique group of health consumers who have exhausted conventional medical
options, have a desire to control their healthcare, and are actively seeking information on the internet for non-
conventional treatments. Several studies have shown that clinics aggressively market inaccurate or false
information to patients where SCIs are conveyed as beneficial, cutting-edge, and safe and effective. To date, it
is unclear what sources of health information patients consider credible or how patients differentiate between
opposing messages such as an advertisement versus a warning. The overall goal of this line of research is to
advance informed decision-making by this new group of health consumers searching alternative options for
chronic conditions. The primary purpose of this study is to explore patients’ knowledge and beliefs regarding
unregulated SCIs, their views on the credibility of online health information, and their perceptions on the
credibility and persuasiveness of online advertisements and warning messages. We will apply the results of
this formative research, informed by theories of health behavior and behavior change, to develop novel
messages to inoculate patients from misinformation or correct misconceptions about unregulated SCIs along
with providing evidence-based information about stem cell procedures. Our three specific aims are to
characterize patient knowledge, beliefs, online information seeking habits, and social networks when
considering unregulated SCIs (Aim 1); explore patients’ perceptions of source credibility (expert versus a
person like me) and persuasiveness of video and text-based advertisements and warnings about SCIs (Aim 2);
and develop and pre-test a pilot communication intervention to inoculate patients from misinformation and
correct misconceptions about unregulated SCIs (Aim 3). We will use qualitative research methods to address
all three aims and recruit potential participants from a unique database of patients who have called into a
regenerative consultation service to find out more about SCIs for their condition. Our work is particularly
innovative as it combines theories of health behavior and social psychology with patient perception data to
inform the design of communication interventions to combat misinformation. Upon completing this exploratory
research, we will be able to craft online messages that are salient and credible to address the unmet
informational needs of this group of health consumers and help address the global health problem of
unregulated stem cell and regenerative interventions.
Status | Finished |
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Effective start/end date | 5/1/21 → 2/29/24 |
Funding
- National Institute on Aging: $238,382.00
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