The Role and Influence of Prostate Cancer Caregivers Across the Care Continuum

Esther Piervil, Folakemi Odedina, Mary Ellen Young

Research output: Contribution to journalArticlepeer-review


Background. Black men endure a disproportionate burden of morbidity and mortality related to prostate cancer (CaP). Increasingly family members are assuming the role of providing care and support to family members with chronic disease. Understanding the role and influence of the caregiver is a necessary part of developing resources to assist individuals learning to provide care. Aim. The analysis aimed to explore CaP survivors’ perceptions of the role and influence of family caregivers to better understand existing opportunities for improving experiences and outcomes for both the caregiver and the care receiver. Design. Secondary analysis of qualitative interview transcripts. Data were analyzed to explore new inquiries related to CaP survivors’ perceptions of family caregivers’ role and influence at each stage of care. Content analysis was used to group data into established categories. Data Source. Data included qualitative interview transcripts with 32 CaP survivors from the Florida Prostate Cancer Care and Survivorship Project. Results. The role of the family caregiver is complex. Caregivers in this community seem to have a significant influence on behavior modification and cues to action for Black men with prostate cancer. According to the men in this group, caregivers functioned as normalizing agents, coordinating care and creating a new normal, throughout the various stages of care and survivorship. Conclusions. Findings inform areas for future research to develop culturally tailored health promotion programs designed to improve outcomes and address the needs of both the family caregiver and the care receiver across the care continuum.

Original languageEnglish (US)
Pages (from-to)436-444
Number of pages9
JournalHealth promotion practice
Issue number3
StatePublished - May 1 2019


  • Black men
  • family caregiving
  • prostate cancer
  • qualitative secondary analysis

ASJC Scopus subject areas

  • Public Health, Environmental and Occupational Health
  • Nursing (miscellaneous)


Dive into the research topics of 'The Role and Influence of Prostate Cancer Caregivers Across the Care Continuum'. Together they form a unique fingerprint.

Cite this