TY - JOUR
T1 - Telemedicine Use for Movement Disorders
T2 - A Global Survey
AU - Hassan, Anhar
AU - Dorsey, E. Ray
AU - Goetz, Christopher G.
AU - Bloem, Bastiaan R.
AU - Guttman, Mark
AU - Tanner, Caroline M.
AU - Mari, Zoltan
AU - Pantelyat, Alexander
AU - Galifianakis, Nicholas B.
AU - Bajwa, Jawad A.
AU - Gatto, Emilia M.
AU - Cubo, Esther
N1 - Funding Information:
Christopher G. Goetz: Consulting or advisory board membership with honoraria: Acadia, Addex, Avanir, Boston Scientific, Neurocrine, Oxford Biomedica, WebMD. Grants/ research: funding to Rush University Medical Center from NIH, Michael J. Fox Foundation for research conducted by Dr Goetz. Dr Goetz directs the Rush Parkinson’s Disease Research Center that receives support from the Parkinson’s Disease Foundation, and some of these funds support Dr Goetz’s salary and his research efforts. He directed the translation program for the Movement Disorder Society Unified Parkinson’s Disease Rating Scale and Unified Dyskinesia Rating Scale and received funds directed to Rush University Medical Center from the International Parkinson and MDS for this effort. Honoraria: Oregon Health and Science University. Intellectual property rights: none. Ownership interests: none. Royalties: Elsevier Publishers, Oxford University Press, Wolters Kluwer. Salary: Rush University Medical Center.
Funding Information:
E. Ray Dorsey: Dr Dorsey’s effort was supported by the Patient-Centered Outcomes Research Institute. Consulting with honoraria: Abbott, AbbVie, GSK, Karger, MC10, MedA-vante, Teva, UCB, Voyager Therapeutics. Grants/research: AbbVie, AMC Health, Burroughs Wellcome Fund, Huntington Study Group, Greater Rochester Health Foundation, Michael J. Fox Foundation, National Institute of Neurological Disorders and Stroke, Roche, Patient-Centered Outcomes Research Institute, Safra Foundation, and Teva Pharmaceuticals. Intellectual property rights: none. Ownership interests: stock options in BlackFynn and Grand Rounds. Royalties: None. Salary: University of Rochester Medical Center.
Funding Information:
Caroline M. Tanner is an employee of the San Francisco Veterans Affairs Medical Center and the University of California–San Francisco. She receives grants from the Michael J. Fox Foundation, the Parkinson’s Disease Foundation, the Department of Defense, Sage Bionetworks, and the National Institutes of Health, compensation for serving on Data Monitoring Committees from Biotie Therapies, Voyager Therapeutics, and Intec Pharma, and personal fees for consulting from Neurocrine Biosciences, Cynapsus Therapeutics, and Adamas Pharmaceuticals.
Funding Information:
Mark Guttman: Consulting for CHDI, advisory board: Roche, Ionis, UCB Pharma. Research grants from Teva, Pfizer, NIH, NPF, and CHDI. Ownership interest: Neuroderm.
Funding Information:
Jawad A. Bajwa: Grants/research: intramural research grant from King Fahad Medical City, Riyadh, Saudi Arabia. Honoraria: none. Intellectual property rights: none. Ownership interests: none. Royalties: none. Salary: King Fahad Medical City, Riyadh, Saudi Arabia.
Funding Information:
Bastiaan R. Bloem has received research grants from the Michael J. Fox Foundation, the Stichting Parkinson Fonds, the Topsector Life Sciences and Health, and UCB Pharma for research projects related to wearable sensors.
Publisher Copyright:
© Copyright 2018, Mary Ann Liebert, Inc., publishers 2018.
PY - 2018/12
Y1 - 2018/12
N2 - Background: Telemedicine is increasingly used to care for patients with movement disorders, but data regarding its global use are limited. Introduction: To obtain baseline international data about telemedicine use among movement disorder clinicians. Methods: An online survey was sent to all 6,056 Movement Disorder Society members in 2015. Scope, reimbursement, and perceived quality of telemedicine were assessed. Results: There were 549 respondents (9.1% overall response rate) from 83 countries. Most (85.8%) were physicians, and most (70.9%) worked in an academic or university practice. Half of respondents (n = 287, from 57 countries) used telemedicine for clinical care; activities included e-mail (63.2%), video visits (follow-up [39.7%] and new [35.2%]), and video-based education (35.2%). One hundred five respondents personally conducted video visits, most frequently to outpatient clinics (53.5%), patient homes (30.8%), and hospital inpatients (30.3%). The most common challenges were a limited neurological examination (58.9%) and technological difficulties (53.3%), and the most common benefits were reduced travel time (92.9%) and patient costs (60.1%). The most frequent reimbursements were none (39.0%), public insurance (24.5%), and patient payment (9.3%). Half of respondents planned to use telemedicine in the future, and three-quarters were interested in telemedicine education. Conclusions: More than 250 respondents around the world engage in telemedicine for movement disorders; most perceived benefit for patients, despite challenges and reimbursement for clinicians. Formal instruction on telemedicine is highly desired. Although the survey response was low and possibly biased to over represent those with telemedicine experience, the study provides baseline data for future comparison and to improve telemedicine delivery.
AB - Background: Telemedicine is increasingly used to care for patients with movement disorders, but data regarding its global use are limited. Introduction: To obtain baseline international data about telemedicine use among movement disorder clinicians. Methods: An online survey was sent to all 6,056 Movement Disorder Society members in 2015. Scope, reimbursement, and perceived quality of telemedicine were assessed. Results: There were 549 respondents (9.1% overall response rate) from 83 countries. Most (85.8%) were physicians, and most (70.9%) worked in an academic or university practice. Half of respondents (n = 287, from 57 countries) used telemedicine for clinical care; activities included e-mail (63.2%), video visits (follow-up [39.7%] and new [35.2%]), and video-based education (35.2%). One hundred five respondents personally conducted video visits, most frequently to outpatient clinics (53.5%), patient homes (30.8%), and hospital inpatients (30.3%). The most common challenges were a limited neurological examination (58.9%) and technological difficulties (53.3%), and the most common benefits were reduced travel time (92.9%) and patient costs (60.1%). The most frequent reimbursements were none (39.0%), public insurance (24.5%), and patient payment (9.3%). Half of respondents planned to use telemedicine in the future, and three-quarters were interested in telemedicine education. Conclusions: More than 250 respondents around the world engage in telemedicine for movement disorders; most perceived benefit for patients, despite challenges and reimbursement for clinicians. Formal instruction on telemedicine is highly desired. Although the survey response was low and possibly biased to over represent those with telemedicine experience, the study provides baseline data for future comparison and to improve telemedicine delivery.
KW - Geography
KW - Healthcare
KW - Movement disorders
KW - Technology
KW - Telemedicine
KW - Video
UR - http://www.scopus.com/inward/record.url?scp=85057766549&partnerID=8YFLogxK
UR - http://www.scopus.com/inward/citedby.url?scp=85057766549&partnerID=8YFLogxK
U2 - 10.1089/tmj.2017.0295
DO - 10.1089/tmj.2017.0295
M3 - Article
C2 - 29565764
AN - SCOPUS:85057766549
SN - 1530-5627
VL - 24
SP - 979
EP - 992
JO - Telemedicine and e-Health
JF - Telemedicine and e-Health
IS - 12
ER -