Recommendations for development of acute seizure action plans (ASAPs) from an expert panel

Patricia Penovich, Tracy Glauser, Danielle Becker, Anup D. Patel, Joseph Sirven, Lucretia Long, John Stern, Tracy Dixon-Salazar, Enrique Carrazana, Adrian L. Rabinowicz

Research output: Contribution to journalReview articlepeer-review


Purpose of review: Disease-related treatment action plans for acute exacerbations providing information that may be helpful for self-management for patients and caregivers are commonly used for chronic conditions such as asthma and diabetes. However, among patients with epilepsy, a review of the literature suggested that the majority did not have an action plan in place for acute seizure treatment. Recent findings: Currently, there is a lack of unified guidance on seizure action plans (SAPs) in the literature. In the authors’ opinion, available formats have limitations for practical use and may not be easily customizable to individual patients, and they are not often designed to provide simple-to-follow steps for rapid immediate steps to determine and initiate appropriate treatment of seizure emergencies. Our group reviewed current examples of SAPs and provided guidance on the development of acute seizure action plans (ASAPs) designed to facilitate rapid, appropriate acute care in the community and to be as useful as possible for a wide range of care partners, including those with limited experience. This paper provides agreed upon expert opinion recommendations and considerations for goals, development process, types of content, and format for an ASAP.

Original languageEnglish (US)
Article number108264
JournalEpilepsy and Behavior
StatePublished - Oct 2021


  • Rescue therapy
  • Seizure action plan
  • Seizure clusters
  • Seizure emergency
  • Status epilepticus

ASJC Scopus subject areas

  • Neurology
  • Clinical Neurology
  • Behavioral Neuroscience


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