Bridging the Gap: Enhancing Prostate Cancer Survivorship and Advocacy Among Ethnically Diverse Black Men Through Community Town Halls

Motolani E. Ogunsanya; Ernest Kaninjing; Sara M. DeForge; Daniel J. Morton; Perry Cole; Patrick Beckford; Donald Reese; Thomas Mitchell; Everett Montgomery; Roland Odeleye; Erick Y. Miró-Rivera; Kaitlin Roberts; Jordan M. Neil; Adam C. Alexander; Rachel K. Funk-Lawler; Desiree Azizoddin; Mack Roach; Samuel L. Washington; Kathleen Dwyer; Mary Ellen Young; Folakemi T. Odedina; Darla E. Kendzor

doi:10.1007/s13187-025-02587-1

Bridging the Gap: Enhancing Prostate Cancer Survivorship and Advocacy Among Ethnically Diverse Black Men Through Community Town Halls

Motolani E. Ogunsanya, Ernest Kaninjing, Sara M. DeForge, Daniel J. Morton, Perry Cole, Patrick Beckford, Donald Reese, Thomas Mitchell, Everett Montgomery, Roland Odeleye, Erick Y. Miró-Rivera, Kaitlin Roberts, Jordan M. Neil, Adam C. Alexander, Rachel K. Funk-Lawler, Desiree Azizoddin, Mack Roach, Samuel L. Washington, Kathleen Dwyer, Mary Ellen YoungFolakemi T. Odedina, Darla E. Kendzor

Quantitative Health Sciences

Research output: Contribution to journal › Article › peer-review

Abstract

We present findings from town hall meetings held with ethnically diverse Black prostate cancer (CaP) survivors in 2022 and 2023. Four town halls (total participants, N = 265) focused on diagnosis, treatment, psychosocial support, and overall survivorship. Moderated by a long-term CaP survivor, each session featured a panel that included medical providers (urologic oncologists and clinical psychologists), as well as CaP survivors of American, Caribbean, and African origin and their spouses. Surveys captured demographic data, clinical information, CaP-specific details (for survivors only), and perceptions of the town halls. The meetings highlighted three interrelated themesinfluencing decision-making: access to comprehensive information, the strength of support networks, and the availability of culturally competent care. These town halls revealed important educational and support opportunities for ethnically diverse Black men with CaP, promoting informed decision-making throughout the cancer journey and improving quality of life while reducing decisional regret during survivorship.

Original language	English (US)
Journal	Journal of Cancer Education
DOIs	https://doi.org/10.1007/s13187-025-02587-1
State	Accepted/In press - 2025

Keywords

Cancer survivorship
Patient education
Prostate cancer
Quality of life
Town halls

ASJC Scopus subject areas

Oncology
Public Health, Environmental and Occupational Health

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10.1007/s13187-025-02587-1

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Ogunsanya, M. E., Kaninjing, E., DeForge, S. M., Morton, D. J., Cole, P., Beckford, P., Reese, D., Mitchell, T., Montgomery, E., Odeleye, R., Miró-Rivera, E. Y., Roberts, K., Neil, J. M., Alexander, A. C., Funk-Lawler, R. K., Azizoddin, D., Roach, M., Washington, S. L., Dwyer, K., ... Kendzor, D. E. (Accepted/In press). Bridging the Gap: Enhancing Prostate Cancer Survivorship and Advocacy Among Ethnically Diverse Black Men Through Community Town Halls. Journal of Cancer Education. https://doi.org/10.1007/s13187-025-02587-1

Ogunsanya, ME, Kaninjing, E, DeForge, SM, Morton, DJ, Cole, P, Beckford, P, Reese, D, Mitchell, T, Montgomery, E, Odeleye, R, Miró-Rivera, EY, Roberts, K, Neil, JM, Alexander, AC, Funk-Lawler, RK, Azizoddin, D, Roach, M, Washington, SL, Dwyer, K, Young, ME, Odedina, FT & Kendzor, DE 2025, 'Bridging the Gap: Enhancing Prostate Cancer Survivorship and Advocacy Among Ethnically Diverse Black Men Through Community Town Halls', Journal of Cancer Education. https://doi.org/10.1007/s13187-025-02587-1

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title = "Bridging the Gap: Enhancing Prostate Cancer Survivorship and Advocacy Among Ethnically Diverse Black Men Through Community Town Halls",

abstract = "We present findings from town hall meetings held with ethnically diverse Black prostate cancer (CaP) survivors in 2022 and 2023. Four town halls (total participants, N = 265) focused on diagnosis, treatment, psychosocial support, and overall survivorship. Moderated by a long-term CaP survivor, each session featured a panel that included medical providers (urologic oncologists and clinical psychologists), as well as CaP survivors of American, Caribbean, and African origin and their spouses. Surveys captured demographic data, clinical information, CaP-specific details (for survivors only), and perceptions of the town halls. The meetings highlighted three interrelated themesinfluencing decision-making: access to comprehensive information, the strength of support networks, and the availability of culturally competent care. These town halls revealed important educational and support opportunities for ethnically diverse Black men with CaP, promoting informed decision-making throughout the cancer journey and improving quality of life while reducing decisional regret during survivorship.",

keywords = "Cancer survivorship, Patient education, Prostate cancer, Quality of life, Town halls",

author = "Ogunsanya, {Motolani E.} and Ernest Kaninjing and DeForge, {Sara M.} and Morton, {Daniel J.} and Perry Cole and Patrick Beckford and Donald Reese and Thomas Mitchell and Everett Montgomery and Roland Odeleye and Mir{\'o}-Rivera, {Erick Y.} and Kaitlin Roberts and Neil, {Jordan M.} and Alexander, {Adam C.} and Funk-Lawler, {Rachel K.} and Desiree Azizoddin and Mack Roach and Washington, {Samuel L.} and Kathleen Dwyer and Young, {Mary Ellen} and Odedina, {Folakemi T.} and Kendzor, {Darla E.}",

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year = "2025",

doi = "10.1007/s13187-025-02587-1",

language = "English (US)",

journal = "Journal of Cancer Education",

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TY - JOUR

T1 - Bridging the Gap

T2 - Enhancing Prostate Cancer Survivorship and Advocacy Among Ethnically Diverse Black Men Through Community Town Halls

AU - Ogunsanya, Motolani E.

AU - Kaninjing, Ernest

AU - DeForge, Sara M.

AU - Morton, Daniel J.

AU - Cole, Perry

AU - Beckford, Patrick

AU - Reese, Donald

AU - Mitchell, Thomas

AU - Montgomery, Everett

AU - Odeleye, Roland

AU - Miró-Rivera, Erick Y.

AU - Roberts, Kaitlin

AU - Neil, Jordan M.

AU - Alexander, Adam C.

AU - Funk-Lawler, Rachel K.

AU - Azizoddin, Desiree

AU - Roach, Mack

AU - Washington, Samuel L.

AU - Dwyer, Kathleen

AU - Young, Mary Ellen

AU - Odedina, Folakemi T.

AU - Kendzor, Darla E.

PY - 2025

Y1 - 2025

N2 - We present findings from town hall meetings held with ethnically diverse Black prostate cancer (CaP) survivors in 2022 and 2023. Four town halls (total participants, N = 265) focused on diagnosis, treatment, psychosocial support, and overall survivorship. Moderated by a long-term CaP survivor, each session featured a panel that included medical providers (urologic oncologists and clinical psychologists), as well as CaP survivors of American, Caribbean, and African origin and their spouses. Surveys captured demographic data, clinical information, CaP-specific details (for survivors only), and perceptions of the town halls. The meetings highlighted three interrelated themesinfluencing decision-making: access to comprehensive information, the strength of support networks, and the availability of culturally competent care. These town halls revealed important educational and support opportunities for ethnically diverse Black men with CaP, promoting informed decision-making throughout the cancer journey and improving quality of life while reducing decisional regret during survivorship.

AB - We present findings from town hall meetings held with ethnically diverse Black prostate cancer (CaP) survivors in 2022 and 2023. Four town halls (total participants, N = 265) focused on diagnosis, treatment, psychosocial support, and overall survivorship. Moderated by a long-term CaP survivor, each session featured a panel that included medical providers (urologic oncologists and clinical psychologists), as well as CaP survivors of American, Caribbean, and African origin and their spouses. Surveys captured demographic data, clinical information, CaP-specific details (for survivors only), and perceptions of the town halls. The meetings highlighted three interrelated themesinfluencing decision-making: access to comprehensive information, the strength of support networks, and the availability of culturally competent care. These town halls revealed important educational and support opportunities for ethnically diverse Black men with CaP, promoting informed decision-making throughout the cancer journey and improving quality of life while reducing decisional regret during survivorship.

KW - Cancer survivorship

KW - Patient education

KW - Prostate cancer

KW - Quality of life

KW - Town halls

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ER -

Bridging the Gap: Enhancing Prostate Cancer Survivorship and Advocacy Among Ethnically Diverse Black Men Through Community Town Halls

Abstract

Keywords

ASJC Scopus subject areas

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