Awareness of myeloma care and the global impact of treatment: An international internet-based prospective study

Sikander Ailawadhi, Abhisek Swaika, Pooja Advani, David Hodge, Aneel Paulus, Nandita Khera, Shahrukh K. Hashmi, Victoria R. Alegria, Mays Abdulazeez, Srilekha Bodepudi, Khushi Jamwal, Vivek Roy, Taimur Sher, Asher Chanan-Khan, Meghna Ailawadhi

Research output: Contribution to journalArticlepeer-review


Objective: Outcomes in multiple myeloma (MM) have significantly improved necessitating focus on survivorship. Methods: We undertook a web-based survey in collaboration with International Myeloma Foundation (IMF) to explore patient awareness and psycho-physical impacts of MM. The survey was viewed on the IMF website by 1,324 individuals from 32 countries. Results: The survey responses were available from 959 individuals, with 62% who completed the survey. Treating doctors were the most frequent source of MM-related information. Only 56% patients admitted full compliance with treatment. Treatment side effects bothered 86% responders, including >50% admitting to pain, peripheral neuropathy and asthenia. Majority (57%) reported some degree of depression, 82% had discontent with their quality of life and only 35% reported being satisfied with their coping mechanisms. Patients ≥65 years of age reported more peripheral neuropathy (p = 0.007) and difficulty with ability to work (p = 0.015). Conclusions: We report the prevalence of psychologic, social and physical domains as well as patient-physician relationship dynamics. This knowledge can help improve MM survivorship.Introduction.

Original languageEnglish (US)
Pages (from-to)425-433
Number of pages9
JournalJournal of Oncology Pharmacy Practice
Issue number2
StatePublished - Mar 2022


  • Multiple myeloma
  • international
  • internet
  • survey
  • survivorship

ASJC Scopus subject areas

  • Oncology
  • Pharmacology (medical)


Dive into the research topics of 'Awareness of myeloma care and the global impact of treatment: An international internet-based prospective study'. Together they form a unique fingerprint.

Cite this